http://praderwilli.org.au/board daily 0.75 2024-02-29 https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1709243448728-03Y8PRU5JSK9SA2K0S1W/kath.jpg Board - Kathlene Jones CEO, FOUNDER AND BOARD MEMBER Kathlene Jones is mother to a beautiful young girl with Prader-Willi Syndrome and is establishing PWRFA to develop breakthrough treatments that will enable people with Prader-Willi Syndrome to live independent lives. She has extensive experience in management and strategy, having previously worked as General Manager, Strategy at Australia Post and a consultant at McKinsey & Company. Prior to this she worked around the world (London, Beijing, Hong Kong, Sydney) in marketing strategy and research, business development and as an economist. She has an MBA (Dean’s Honours List) from Melbourne Business School and Columbia Graduate School of Business and graduated first in class with a Bachelor of Agricultural Science (Economics) from the University of Queensland. She is now a freelance management consultant and has been working in the health technology area. https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1709243448728-03Y8PRU5JSK9SA2K0S1W/kath.jpg Board - Kathlene Jones CEO, FOUNDER AND BOARD MEMBER Kathlene Jones is mother to a beautiful young girl with Prader-Willi Syndrome and is establishing PWRFA to develop breakthrough treatments that will enable people with Prader-Willi Syndrome to live independent lives. She has extensive experience in management and strategy, having previously worked as General Manager, Strategy at Australia Post and a consultant at McKinsey & Company. Prior to this she worked around the world (London, Beijing, Hong Kong, Sydney) in marketing strategy and research, business development and as an economist. She has an MBA (Dean’s Honours List) from Melbourne Business School and Columbia Graduate School of Business and graduated first in class with a Bachelor of Agricultural Science (Economics) from the University of Queensland. She is now a freelance management consultant and has been working in the health technology area. https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1558303819793-Z73OP79YSGUDX6NJAJ28/Duncan.jpeg Board - DUNCAN MCGAUCHIE - PRINCIPLE, TW STRATEGIC CHAIR Duncan is a Corporate Affairs professional with over 15 years’ experience advising CEOs, Boards and Ministers across the Corporate Affairs Function including strategic communications, public affairs, media relations as well as public policy development and advocacy. Duncan provides counsel and support to a wide range of large and small organisations as Principal Consultant with TW Strategic. He supports clients to engage with markets, government, media and other stakeholders via communications and positioning strategies as well as reputation, issues and crisis management across multiple sectors. He has previously served as a senior policy and political advisor for the Victorian Premier and Minister for Education. https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1457758535752-XEM1ATKTHVMJ726LULRZ/image-asset.jpeg Board - Dr Ian Watt AO CHAIR Dr Ian J Watt AO has had a long career as one of Australia's most distinguished public servants, with nearly 20 years at the highest levels of the public service. His most recent and most senior appointment was as Secretary of the Department of the Prime Minister and Cabinet and head of the Australian Public Service, a position he held from 2011 until the end of 2014. Prior to that, he was Secretary of the Departments of Defence; Finance; and Communications, Information Technology and the Arts between 2001 and 2011. Before that, he was Deputy Secretary of the Department of the Prime Minister and Cabinet. Dr Watt serves on the Boards of Citigroup Pty Ltd, Smartgroup Corporation, the Grattan Institute (University of Melbourne) and O'Connell Street Associates Pty Ltd, and is a Member of the Male Champions of Change. He is also Chair of the National Innovation and Science Agenda Implementation Committee and Chair of the International Centre for Democratic Partnerships.   https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1558558728943-COZGVZAORT7TT0HIGZXZ/amy.jpg Board - Amy Brennan BOARD MEMBER Amy Brennan is a barrister and practices extensively in the criminal and employment law jurisdictions, including occupational health and safety work. She completed her articles and initially practiced as an employment lawyer at Maddocks. Amy then took up a position as Associate to Justice Teague at the Supreme Court of Victoria. Immediately prior to signing the Bar Roll, Amy worked at Victoria Legal Aid. In 2012, Amy was chosen by the Victorian Bar Council to represent the Victorian Bar at a nine week internship program in Paris called the Stage Internationale du Barreau de Paris. She is currently the secretary of the Equality & Diversity Committee at the Bar. Amy has a sister with cerebral palsy giving her a personal understanding of the challenges and needs of families living with disability.   https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1560989650488-JRY3GCVI4Q4J4DLXT9GW/rebecca.jpg Board - Rebecca Cross PSM BOARD MEMBER Rebecca Cross joined Bupa at the end of February 2016 to undertake a 12 month secondment as Head of Government, Policy and Regulatory Affairs. Her responsibilities include supporting Bupa's interactions with governments, industry stakeholders and regulators on private health insurance and aged care, as well as Bupa's other health and care services. Rebecca was previously a Deputy Secretary heading up Domestic Policy at the Department of Prime Minister and Cabinet (PM&C), where she was responsible for social policy (including health, education, social and health services), the Council of Australian Governments (COAG), regulatory reform, and the Office for Women. Prior to joining PM&C in 2009 Rebecca spent over 16 years in the education, training and employment portfolio in the Commonwealth government. During this time she worked on policy and programs in schools, vocational education and training, youth transitions, international education, and employment, including a period as Senior Advisor to the then Minister for Employment, Education and Training, the Hon. David Kemp MP.     https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1457758705755-725ELFHB2Z10ZPBBVD95/image-asset.jpeg Board - Dr Ian Watt AO ADVISOR Dr Ian J Watt AO has had a long career as one of Australia's most distinguished public servants, with nearly 20 years at the highest levels of the public service. His most recent and most senior appointment was as Secretary of the Department of the Prime Minister and Cabinet and head of the Australian Public Service, a position he held from 2011 until the end of 2014. Prior to that, he was Secretary of the Departments of Defence; Finance; and Communications, Information Technology and the Arts between 2001 and 2011. Before that, he was Deputy Secretary of the Department of the Prime Minister and Cabinet. Dr Watt serves on the Boards of Citigroup Pty Ltd, Smartgroup Corporation, the Grattan Institute (University of Melbourne) and O'Connell Street Associates Pty Ltd, and is a Member of the Male Champions of Change. He is also Chair of the National Innovation and Science Agenda Implementation Committee and Chair of the International Centre for Democratic Partnerships. https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1626240196951-TBTBWFNK9EHKDFLU9CKP/emma.jpg Board - Amy Johnson Amy Johnson is a Chartered Accountant and mother of a wonderful boy with Prader-Willi Syndrome. She holds qualifications from both UTS and UNSW in Sydney in commerce, business and international studies. With a career spanning tech, financial services, travel and telco in both Australia and the United Kingdom, Amy is passionate about helping teams achieve more than they thought possible. Amy is based on Sydney's Northern Beaches and joined the Board in the capacity of company secretary in 2021. https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1457758633232-OZHQX9M27K89935M1V85/image-asset.jpeg Board - Dr Ian Watt AO CHAIR Dr Ian J Watt AO has had a long career as one of Australia's most distinguished public servants, with nearly 20 years at the highest levels of the public service. His most recent and most senior appointment was as Secretary of the Department of the Prime Minister and Cabinet and head of the Australian Public Service, a position he held from 2011 until the end of 2014. Prior to that, he was Secretary of the Departments of Defence; Finance; and Communications, Information Technology and the Arts between 2001 and 2011. Before that, he was Deputy Secretary of the Department of the Prime Minister and Cabinet. Dr Watt serves on the Boards of Citigroup Pty Ltd, Smartgroup Corporation, the Grattan Institute (University of Melbourne) and O'Connell Street Associates Pty Ltd, and is a Member of the Male Champions of Change. He is also Chair of the National Innovation and Science Agenda Implementation Committee and Chair of the International Centre for Democratic Partnerships.   https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1463274329128-TAUQRS6ST6S5010OBP2Y/DSC_0323+%281%29.jpeg Board - Professor Ian Cooke BOARD MEMBER Prof Ian Cooke is CEO of the Cooperative Research Centre for Mental Health, a 19-party consortium that was established in 2011 under the Australian Government’s Cooperative Research Centres Program. The CRC for Mental Health aims to develop biomarker-based clinical decision tools for use in the diagnosis and treatment of neurodegenerative diseases, psychoses and mood disorders. Prof Cooke’s previous roles include appointments as a Professorial Fellow in the Asia Pacific Centre for Science and Wealth Creation at Monash University, CEO of Foursight Associates, a science and technology advisory company based in Melbourne, CEO of CNSBio, a clinical-stage venture capital-backed company spun out of Monash University to commercialise novel therapies for the treatment of severe pain and Associate Director (R&D) of the Burnet Institute in Melbourne. He has held academic and research appointments at Deakin University, Princeton University, Bell Laboratories and the Woods Hole Marine Biological Laboratory. Prof Cooke holds BSc (Hons), PhD and M IP Law degrees from the University of Melbourne and an MBA degree from Monash University. https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1560989650488-JRY3GCVI4Q4J4DLXT9GW/rebecca.jpg Board - DUNCAN MCGAUCHIE BOARD MEMBER https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1531875930781-VSI19UPBEJWBKL6G0MIB/JP_pic.png Board - PROFESSOR JOE PROIETTO BOARD MEMBER Joseph Proietto is Professor Emeritus at the University of Melbourne in the Department of Medicine Austin Health and an Endocrinologist specialising in Diabetes and Obesity. He established the first obesity clinic in Victoria at the Royal Melbourne Hospital and is now Head of the Weight control clinic at Austin Health. Professor Proietto was the inaugural Sir Edward Dunlop Medical Research Foundation, Professor of Medicine, and Head of the Metabolic Disorders Research Group in the Department of Medicine, Austin Health. He is currently on the executive of World Obesity and is Chair of the Clinical Care Committee. Professor Proietto has published over 200 articles and several book chapters on obesity and diabetes. He is the Author of “Body Weight Regulation: Essential Knowledge to lose weight and keep it off”. https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1457758437534-O6JJYIUD732BZGFJQDSR/person-placeholder.jpg Board - Kathlene Jones CEO & FOUNDER Kathlene Jones is mother to a beautiful young girl with Prader-Willi Syndrome and is establishing PWRFA to develop breakthrough treatments that will enable people with Prader-Willi Syndrome to live independent lives. She has extensive experience in management and strategy, having previously worked as General Manager, Strategy at Australia Post and a consultant at McKinsey & Company. Prior to this she worked around the world (London, Beijing, Hong Kong, Sydney) in marketing strategy and research, business development and as an economist. She has an MBA (Dean’s Honours List) from Melbourne Business School and Columbia Graduate School of Business and graduated first in class with a Bachelor of Agricultural Science (Economics) from the University of Queensland. She is now a freelance management consultant and has been working in the health technology area. https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1618299142262-I7B6WKQ3SS6MZN63E6PY/images-coming-soon.jpg Board - DR SUSAN BLAIR - NEPHROLOGIST BOARD MEMBER Dr Susan Blair is the mum of an endlessly delightful six year-old with PWS. She has 10 years’ experience as an adult Nephrologist and her particular interest is in delivering high quality, chronic, complex care. She is a practicing clinician in Geelong, following previous appointments at the Southern and Eastern Health Care Networks in Victoria and at Monash University. She gained her MBBS (Hons) from Monash and is a Fellow of the RACP. http://praderwilli.org.au/blog daily 0.75 2026-02-02 http://praderwilli.org.au/blog/2026/2/2/gemma-and-birdies-feeding-tube-story monthly 0.5 2026-02-02 https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1770036525368-DIOUR4Y73E6XWEWX2I0E/PWRFA+-+Instagram+%28TP%29+%283%29.png Blog - Gemma and Birdies Feeding Tube story https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1770036510243-HTUSIOO6U73ZHKW8TZ55/att.0-Lh10s0VdAGF5bBlf9zgIx_YeYn2ui5W-mOvBkZbj4.JPG Blog - Gemma and Birdies Feeding Tube story https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1770036517513-WHNZI5P074T96UPZMI5O/att.A_xF_JlicCz2BpYw7LR23FAlBCBubWMRqrFtpmJWraM.JPG Blog - Gemma and Birdies Feeding Tube story http://praderwilli.org.au/blog/2024/11/28/ironman-for-lucy-matts-mission-for-prader-willi-syndrome monthly 0.5 2024-11-28 http://praderwilli.org.au/blog/2024/6/6/what-does-pwrfa-mean-to-you-featruing-aprof-david-godler monthly 0.5 2024-06-06 https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/0758588c-a03f-4477-9548-6d02005736b6/david+godler.png Blog - What does PWRFA mean to you featuring A/Prof David Godler - Make it stand out Whatever it is, the way you tell your story online can make all the difference. http://praderwilli.org.au/blog/pitolisant monthly 0.5 2024-04-19 https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/9ae0387e-cb31-47d4-99ce-038be016873f/CLINCAL+TRIAL+Update+%282%29.png Blog - Clinical Trial Update, Pitolisant sites coming to Australia. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. http://praderwilli.org.au/blog/2023/12/5/save-the-date-2024-asia-pacific-pws-conference monthly 0.5 2023-12-05 https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/4dc5fb87-4cf5-48d0-b9e3-307d534e6816/FINAL+FLYER.jpg Blog - SAVE THE DATE - 2024 Asia Pacific PWS Conference - Make it stand out Whatever it is, the way you tell your story online can make all the difference. http://praderwilli.org.au/blog/2023/12/5/2023-research-showcase monthly 0.5 2023-12-05 https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/fdf5fb04-59bb-4278-b32c-8e757800cf9f/researchers.png Blog - 2023 Showcase celebrates PWS research - Make it stand out Scientists Prof Tony Hannan (Florey Institute), Dr Emma Baker (MCRI), Dr Claudine Kraan (MCRI), Assoc Prof David Godler (MCRI), Prof David Amor (MCRI) and Prof Marnie Blewitt (WEHI). https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/b02a2bc4-09bd-4b38-a769-a1c672864e15/3.png Blog - 2023 Showcase celebrates PWS research - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/b93cbd8e-0415-4978-ba56-4fe5743667e6/1.png Blog - 2023 Showcase celebrates PWS research - Make it stand out PWRFA Research Director Diane Webster, CEO Kathlene Jones, Board Director Susan Blair, and Chair Duncan McGauchie. https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/63e1dd56-b0fb-470f-9eab-a46c66a36db9/2.png Blog - 2023 Showcase celebrates PWS research - Make it stand out Kathlene Jones, Prof Marnie Blewitt, Leo Lui and Diane Webster. http://praderwilli.org.au/blog/2022/4/29/what-is-the-history-of-the-prader-willi-foundation-australia-may-event monthly 0.5 2022-04-29 http://praderwilli.org.au/blog/2022/2/18/congratulations-to-meg-iminitoff monthly 0.5 2022-02-18 https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/e8959be4-5fd6-44c2-9285-ab36ed54ba9c/MEG-W.jpeg Blog - Congratulations to Meg Iminitoff - Make it stand out Whatever it is, the way you tell your story online can make all the difference. http://praderwilli.org.au/blog/2021/2/19/pws-research-update-held-on-10-february-2021 monthly 0.5 2021-02-19 https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1613695288094-CFA83WOVA4X6WOO8XM20/David-Godler-W.jpg Blog - PWS Research Update - Held on 10 February 2021 A/Prof David Godler Associate Professor within the Department of Paediatrics, University of Melbourne, group leader of the Diagnosis and Development Laboratory at the Murdoch Children’s Research institute (MCRI) Topics: Australian First Chromosome 15 Imprinting disorders Biobank: Aiming to Enhance Prader Willi Research and Clinical Practice Read more… https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1613695322083-FR5LHXPOT9YCUGUK338T/MEG-W.jpg Blog - PWS Research Update - Held on 10 February 2021 Meg Iminitoff PhD candidate - Professor Marnie Blewitt’s Laboratory at Walter and Eliza Hall Institute (WEHI) Topics: Investigating the epigenetic regulator SMCHD1 as a potential therapeutic target for the treatment of Prader-Willi Syndrome Read more… https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1613695353103-FUCW12PNKY5LYQ2KHHLQ/lauren-w.jpg Blog - PWS Research Update - Held on 10 February 2021 Dr Lauren Rice Research Fellow at the Brain and Mind Centre, University of Sydney and The Children’s Hospital Westmead Clinical School Topic: Oxytocin, GABA and Mindfulness Projects Update Read More… https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1613695391472-CK1X4SIXQLCDXH3QDGOM/cara-w.jpg Blog - PWS Research Update - Held on 10 February 2021 Cara Schofield PhD candidate with Professor Nora Shields - School of Physiotherapy at La Trobe University Topic: Investigating the barriers and facilitators to exercise for people with Prader-Willi syndrome throughout the lifespan. Read more… https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1613695434441-WSWWOPWDVO01Q7R1TQMU/char-w.jpg Blog - PWS Research Update - Held on 10 February 2021 Dr Charlene Waryah Research Fellow, Cancer Epigenetics - Harry Perkins Institute of Medical Research Topic: Epigenome editing to re-activate silenced PWS genes Read more… http://praderwilli.org.au/blog/2020/11/3/possible-genetic-triggers-of-autism-symptoms-and-motor-issues-identified-for-several-rare-diseases monthly 0.5 2020-11-03 http://praderwilli.org.au/blog/2020/11/3/professor-marnie-blewitt-shares-her-work-activating-the-magel-2-gene-cluster-on-chromosome-15 monthly 0.5 2020-11-03 http://praderwilli.org.au/blog/2020/10/24/check-out-whats-been-happening-in-2020-research-news-community-and-fundraising-activitie monthly 0.5 2020-10-24 http://praderwilli.org.au/blog/2020/10/14/live-webinar-developing-new-targeted-therapies-for-prader-willi-syndrome-the-search-for-molecules-that-will-awaken-the-sleeping-genes-in-pws-patients monthly 0.5 2020-10-13 https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1602617921069-7C2E2RCPHT4TV10OOQ9C/Webinar+Final.jpg Blog - LIVE WEBINAR: Developing new targeted therapies for Prader-Willi Syndrome - the search for molecules that will awaken the sleeping genes in PWS patients. http://praderwilli.org.au/blog/2020/10/6/we-are-proud-to-be-awarded-a-perpetual-2020-impact-philanthropy-grant monthly 0.5 2020-10-07 https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1601955815294-JQ6OMPGLWNKSVQP0D42P/science.jpg Blog - We are proud to be awarded a Perpetual 2020 IMPACT Philanthropy grant http://praderwilli.org.au/blog/2020/10/4/australian-first-chromosome-15-biobank-announced monthly 0.5 2020-10-05 https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1601846784373-RPOLPTKRQFGHVV58CPVP/helix.jpg Blog - AUSTRALIAN FIRST CHROMOSOME 15 BIOBANK ANNOUNCED! http://praderwilli.org.au/blog/2020/3/29/associate-professor-patricia-crock-is-the-successful-applicant-for-prader-willi-research-foundation-of-australias-inaugural-newborn-experience-grant monthly 0.5 2020-03-29 http://praderwilli.org.au/blog/2020/3/29/meg-imintoff-travels-to-heidelberg-in-germany-to-visit-professor-christian-schaafs-lab monthly 0.5 2020-03-29 https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1585511050561-YSJKANLF36J19JICM5Q4/Meg_2.jpeg Blog - Meg Imintoff travels to Heidelberg in Germany to visit Professor Christian Schaaf's lab https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1585511165535-OLZ3X435XSBI2OMD0ZSP/Meg_1.jpeg Blog - Meg Imintoff travels to Heidelberg in Germany to visit Professor Christian Schaaf's lab http://praderwilli.org.au/blog/2019/12/18/prader-willi-research-foundation-australia-funds-phd-student-meg-iminitoff monthly 0.5 2019-12-19 http://praderwilli.org.au/blog/2019/12/18/kathlene-jones-announced-as-one-of-westfield-southlands-local-hereos-2019 monthly 0.5 2019-12-19 http://praderwilli.org.au/blog/2019/12/18/prader-willi-research-foundation-goes-to-victorian-parliament monthly 0.5 2019-12-19 https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1576717356400-CTTH4JN7C0P3C1JREIZK/Fiona+Cull+FInding+15-parliament.jpg Blog - Prader Willi Research Foundation goes to Victorian Parliament http://praderwilli.org.au/blog/2019/12/18/funds-in-action monthly 0.5 2019-12-19 http://praderwilli.org.au/blog/2019/12/18/giving-tuesday monthly 0.5 2019-12-19 https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1576717012868-54WSGW6UEDLL53WH77PB/We+Did+it%21.png Blog - Giving Tuesday 2019 http://praderwilli.org.au/blog/2019/9/18/the-foundation-for-prader-willi-research-and-the-prader-willi-research-foundation-of-australia-collaboration monthly 0.5 2019-09-18 http://praderwilli.org.au/blog/2019/5/19/pwrfa-fpwr-and-wehi-partner-to-drive-prader-willi-research monthly 0.5 2019-05-19 http://praderwilli.org.au/blog/2019/4/8/sibling-cord-blood monthly 0.5 2019-04-08 http://praderwilli.org.au/blog/2018/12/16/associate-professor-marnie-blewitt-explains-how-smchd1-is-regulating-gene-expression monthly 0.5 2018-12-16 http://praderwilli.org.au/blog/2017/1/20/oxytocin-may-improve-feeding-and-social-skills-in-infants-with-prader-willi monthly 0.5 2017-01-21 http://praderwilli.org.au/blog/2017/1/20/first-proof-of-principle-for-an-epigenetics-based-therapy-for-prader-willi-syndrome-published monthly 0.5 2017-01-21 http://praderwilli.org.au/blog/2016/12/14/help-us-develop-the-map-for-a-life-changing-genetic-treatment-for-prader-willi-syndrome monthly 0.5 2016-12-14 http://praderwilli.org.au/blog/2016/12/14/key-recommendations-from-australian-prader-willi-syndrome-healthcare-workshop monthly 0.5 2016-12-14 http://praderwilli.org.au/blog/2016/12/14/focus-on-obesity-and-prader-willi monthly 0.5 2016-12-14 http://praderwilli.org.au/blog/2016/10/9/ask-the-researcher-what-is-pitolisant monthly 0.5 2016-10-09 http://praderwilli.org.au/blog/2016/10/3/focus-on-sleep-apnea-and-prader-willi monthly 0.5 2016-10-03 http://praderwilli.org.au/blog/2016/9/26/volunteers-wanted-nsw-study-on-oxytocin-and-the-autonomic-nervous-system-in-prader-willi-syndrome monthly 0.5 2016-09-27 http://praderwilli.org.au/blog/2016/9/17/focus-on-exercise-and-prader-willi-information-for-gyms-and-trainers monthly 0.5 2016-09-18 http://praderwilli.org.au/blog/2016/8/23/global-prader-willi-syndrome-registry-update monthly 0.5 2016-08-23 https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1471953930747-8TZ2FTLF0DM8EPFICOK3/image-asset.jpeg Blog - Global Prader-Willi syndrome registry update http://praderwilli.org.au/blog/2016/8/23/videogame-in-development-to-assist-with-task-switching-in-kids-with-prader-willi monthly 0.5 2016-08-23 https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1471953588401-E93K1O3ET597RQ7RQY56/image-asset.jpeg Blog - Videogame in development to assist with task switching in kids with Prader-Willi http://praderwilli.org.au/blog/2016/8/23/energy-expenditure-physical-activity-and-maximal-oxygen-uptake-in-adults-with-prader-willi-syndrome monthly 0.5 2016-08-23 https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1471953157024-6Y8EBUFDRI9QRCEQS1Y9/image-asset.jpeg Blog - Energy expenditure, physical activity and maximal oxygen uptake in adults with Prader-Willi syndrome http://praderwilli.org.au/blog/2016/8/23/scientific-abstracts-from-2016-ipwso-conference monthly 0.5 2016-08-23 http://praderwilli.org.au/blog/2016/8/8/australian-researcher-recognised-at-international-prader-willi-conference monthly 0.5 2016-08-08 https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1470629682658-W0KBKJAA52A2LBWW61Z8/image-asset.jpeg Blog - Australian researcher recognised at International Prader-Willi conference http://praderwilli.org.au/blog/2016/7/27/themighty monthly 0.5 2016-07-28 https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1469676733289-FC0BY2D59KSQYLS4B3UA/image-asset.jpeg Blog - "I want to share my experiences so people can understand" http://praderwilli.org.au/blog/2016/6/27/focus-on-cognition-and-prader-willi-syndrome monthly 0.5 2016-06-27 http://praderwilli.org.au/blog/2016/6/27/june-2016-newsletter monthly 0.5 2016-06-27 http://praderwilli.org.au/blog/2016/5/20/making-a-difference-adrian monthly 0.5 2016-05-20 https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1463733848774-QB2QO3TBKYLAH71ZA9BO/image-asset.png Blog - Making a difference: Adrian http://praderwilli.org.au/blog/2016/5/18/meet-the-board-member-professor-ian-cooke monthly 0.5 2016-05-18 https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1463545561088-GVMJKM4MZV2Y24N3DP32/image-asset.jpeg Blog - Meet the board member: Professor Ian Cooke http://praderwilli.org.au/blog/2016/5/6/face-4-hope-sid monthly 0.5 2016-05-07 https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1462590688627-3WZCE9LTQNPM4ONC4PDY/image-asset.jpeg Blog - Face 4 Hope: Sid http://praderwilli.org.au/blog/2016/5/4/prader-willi-syndrome-gateway-to-understanding-obesity-and-mental-illness monthly 0.5 2016-05-04 https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1462345617812-T2N1FM0YS6YEVQ80R4V0/image-asset.jpeg Blog - Prader-Willi syndrome: gateway to understanding obesity and mental illness http://praderwilli.org.au/blog/2016/5/2/face-4-hope-ava monthly 0.5 2016-05-02 https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1462175258329-87KSZHDYVCGZL6MXWN96/Face4HopeAva.jpg Blog - Face 4 Hope: Ava http://praderwilli.org.au/blog/2016/4/1/meet-the-scientist-professor-anthony-hannan monthly 0.5 2016-05-16 https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1463384300355-AH7ZUZKTVQT6BZ1JN0YE/image-asset.jpeg Blog - Meet the scientist: Professor Anthony Hannan http://praderwilli.org.au/blog/2016/3/16/6vpctb2u4hfatohmaz30vr11lzrnfs monthly 0.5 2016-03-16 http://praderwilli.org.au/blog/2016/2/28/rare-disease-day-2016 monthly 0.5 2016-02-28 https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1456699612180-8XJ1RL3C35TWR8C36HX9/image-asset.jpeg Blog - Rare Disease Day 2016 http://praderwilli.org.au/blog/2016/2/17/online-auction-to-raise-funds-for-prader-willi-research monthly 0.5 2016-02-22 http://praderwilli.org.au/blog/2016/2/12/stepping-stones-triple-p-project-free-parenting-support-in-queensland-victoria-and-new-south-wales monthly 0.5 2016-02-13 http://praderwilli.org.au/blog/2016/2/2/pwrfa-newsletter monthly 0.5 2019-04-08 http://praderwilli.org.au/blog/2016/1/28/research-volunteers-sought-in-nsw-reducing-stress-in-parents-and-increasing-overall-wellbeing monthly 0.5 2016-01-29 http://praderwilli.org.au/blog/2016/1/20/2016-ipwso-conference-building-global-community monthly 0.5 2016-01-20 http://praderwilli.org.au/blog/2016/1/18/prader-willi-syndrome-research-the-free-fx-study monthly 0.5 2016-01-26 http://praderwilli.org.au/blog/2016/1/6/ask-the-scientist-dr-theresa-strong monthly 0.5 2016-01-07 http://praderwilli.org.au/blog/2015/12/21/stories-of-prader-willi-syndrome-coopers-story monthly 0.5 2015-12-21 http://praderwilli.org.au/blog/2015/12/19/meet-the-scientist-dr-theresa-strong monthly 0.5 2016-05-16 https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1463384095434-P87IQ4B1WL6Z4V8E5LQH/image-asset.jpeg Blog - Meet the scientist: Dr Theresa Strong http://praderwilli.org.au/blog/2015/12/10/stories-of-prader-willi-syndrome-rachael monthly 0.5 2015-12-11 http://praderwilli.org.au/blog/2016/2/5/activity-advent-calendar monthly 0.5 2016-02-05 http://praderwilli.org.au/blog/2015/11/14/meet-the-scientist-dr-sara-howden monthly 0.5 2016-05-16 https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1463384132986-2TOT64EJJRET8WKULR37/image-asset.jpeg Blog - Ask the Scientist: Dr Sara Howden http://praderwilli.org.au/blog/2015/9/30/medical-treatment monthly 0.5 2015-11-15 https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1443603727484-QJURZXCD680W7OB6UFY5/IMG_0476.JPG Blog - Blog http://praderwilli.org.au/blog/tag/stem+cells monthly 0.5 http://praderwilli.org.au/blog/tag/conference monthly 0.5 http://praderwilli.org.au/blog/tag/gene monthly 0.5 http://praderwilli.org.au/blog/tag/angelamn monthly 0.5 http://praderwilli.org.au/blog/tag/scientist monthly 0.5 http://praderwilli.org.au/blog/tag/scientific monthly 0.5 http://praderwilli.org.au/blog/tag/gene+therapy monthly 0.5 http://praderwilli.org.au/blog/tag/Prader+willi monthly 0.5 http://praderwilli.org.au/blog/tag/research monthly 0.5 http://praderwilli.org.au/blog/tag/family+support monthly 0.5 http://praderwilli.org.au/blog/tag/prader-willi monthly 0.5 http://praderwilli.org.au/blog/tag/prader+willi monthly 0.5 http://praderwilli.org.au/blog/tag/international monthly 0.5 http://praderwilli.org.au/our-people daily 0.75 2021-07-14 https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1472876876446-Z92DAQV1SBQ8VCNEX1Z0/Diane+nov2015.jpg Our people - Dr Diane Webster RESEARCH DIRECTOR Dr Diane Webster is a highly skilled science professional, with experience in the management of projects, people and research. She has a detailed understanding of the Australian regulatory landscape and is adept at working within the scope, policies and procedures of academic and government organisations and committees. She holds a PhD in molecular virology and has been a Project Leader at the Burnet Institute and a Laboratory Head at Monash University. In addition to her role as Research Director at the Prader-Willi Research Foundation of Australia, she is the Chair of the Swinburne Biosafety Committee, a member of the Gene Technology Advisory Committee (until Jan 2017), and was the concluding National Convenor of the Women in Science Enquiry Network (which has now merged with Women in STEMM Australia). https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1472876876446-Z92DAQV1SBQ8VCNEX1Z0/Diane+nov2015.jpg Our people - Dr Diane Webster RESEARCH DIRECTOR Dr Diane Webster is a highly skilled science professional, with experience in the management of projects, people and research. She has a detailed understanding of the Australian regulatory landscape and is adept at working within the scope, policies and procedures of academic and government organisations and committees. She holds a PhD in molecular virology and has been a Project Leader at the Burnet Institute and a Laboratory Head at Monash University. In addition to her role as Research Director at the Prader-Willi Research Foundation of Australia, she is the Chair of the Swinburne Biosafety Committee, a member of the Gene Technology Advisory Committee (until Jan 2017), and was the concluding National Convenor of the Women in Science Enquiry Network (which has now merged with Women in STEMM Australia). https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1626240098643-3BO3NYXDVEYFRF9MJK28/emma.jpg Our people - Amy Johnson COMPANY SECRETARY Amy Johnson is a Chartered Accountant and mother of a wonderful boy with Prader-Willi Syndrome. She holds qualifications from both UTS and UNSW in Sydney in commerce, business and international studies. With a career spanning tech, financial services, travel and telco in both Australia and the United Kingdom, Amy is passionate about helping teams achieve more than they thought possible. Amy is based on Sydney's Northern Beaches and joined the Board in the capacity of company secretary in 2021. https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1530511492302-RIQB47HAUIS3ODJ1F1OM/empwrfa.jpeg Our people - Emily Myer CEO Emily is an accomplished program administrator passionate about social impact. Since November 2013 Emily has served as Director and Vice-President of the Board of The Myer Foundation, where she oversees grant-making decisions, strategy, governance and finances. Emily is also Co-convenor of The Myer Foundation’s Mental Health Committee. She sits on the advisory committee of the Jack Brockhoff Child Health and Wellbeing Program's "Kids Contribute" project. Emily is driven by a desire to contribute to initiatives that address disadvantage, and her passions lie particularly in youth mental health, disability, child health and wellbeing and prevention of violence against women. Before returning to Melbourne to start a family in 2011, Emily spent seven years in Europe, working as a consultant in the HR Learning and Performance branch of the UN World Food Programme in Rome, and as Student Affairs Coordinator of the Master of Public Affairs at the renowned French political science university, Sciences Po, in Paris. Emily previously served on the board of the NETS Victoria as well as the Social Justice and Arts and Humanities committees of The Myer Foundation. http://praderwilli.org.au/scientific-advisory daily 0.75 2023-07-27 https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1531876135737-W7X8598LITQ8JJK4YQJW/JP_pic.png Scientific Advisory Council - PROFESSOR JOE PROIETTO: SAC CHAIR - PROFESSOR EMERITUS, UNIVERSITY OF MELBOURNE. HEAD, WEIGHT LOSS CLINIC, AUSTIN HEALTH. CHAIR, CLINICAL CARE COMMITTEE, WORLD OBESITY. Joseph Proietto is Professor Emeritus at the University of Melbourne in the Department of Medicine Austin Health and an Endocrinologist specialising in Diabetes and Obesity. He established the first obesity clinic in Victoria at the Royal Melbourne Hospital and is now Head of the Weight control clinic at Austin Health. Professor Proietto was the inaugural Sir Edward Dunlop Medical Research Foundation, Professor of Medicine, and Head of the Metabolic Disorders Research Group in the Department of Medicine, Austin Health. He is currently on the executive of World Obesity and is Chair of the Clinical Care Committee. Professor Proietto has published over 200 articles and several book chapters on obesity and diabetes. He is the Author of “Body Weight Regulation: Essential Knowledge to lose weight and keep it off”. https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1531876135737-W7X8598LITQ8JJK4YQJW/JP_pic.png Scientific Advisory Council - PROFESSOR JOE PROIETTO: SAC CHAIR - PROFESSOR EMERITUS, UNIVERSITY OF MELBOURNE. HEAD, WEIGHT LOSS CLINIC, AUSTIN HEALTH. CHAIR, CLINICAL CARE COMMITTEE, WORLD OBESITY. Joseph Proietto is Professor Emeritus at the University of Melbourne in the Department of Medicine Austin Health and an Endocrinologist specialising in Diabetes and Obesity. He established the first obesity clinic in Victoria at the Royal Melbourne Hospital and is now Head of the Weight control clinic at Austin Health. Professor Proietto was the inaugural Sir Edward Dunlop Medical Research Foundation, Professor of Medicine, and Head of the Metabolic Disorders Research Group in the Department of Medicine, Austin Health. He is currently on the executive of World Obesity and is Chair of the Clinical Care Committee. Professor Proietto has published over 200 articles and several book chapters on obesity and diabetes. He is the Author of “Body Weight Regulation: Essential Knowledge to lose weight and keep it off”. https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1558312432271-VUMNCXXZQT29VRN2YCQN/Einfeld+photo.jpg Scientific Advisory Council - Professor Stewart Einfeld CHAIR OF MENTAL HEALTH & SENIOR SCIENTIST AT BRAIN AND MIND RESEARCH INSTITUTE Professor Stewart Einfeld is a child psychiatrist with a research interest in the gene-to-behaviour pathways in developmental disabilities. His research into Prader-Willi Syndrome has looked at the behavioural phenotype over the course of development, psychosis and depression, oxytocin, temper outbursts, aggression and brain dysfunction. He is the Chair of Mental Health and Senior Scientist at the Brain and Mind Research Institute at the University of Sydney. https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1443600906465-775WE0Z8V3TD0VMQS9LQ/Anthony+Hannan.jpg Scientific Advisory Council - Professor Anthony Hannan HEAD NEURAL PLASTICITY, THE FLOREY INSTITUTE OF NEUROSCIENCE AND MENTAL HEALTH Professor Hannan currently holds an NHMRC Senior Research Fellowship, and is Professorial Fellow at the Florey and the University of Melbourne. His Neural Plasticity Laboratory explores how genes and environment combine via experience-dependent plasticity in the healthy and diseased brain. This research includes models of specific neurological and psychiatric disorders which involve cognitive and affective dysfunction, investigated at behavioural, cellular and molecular levels so as to identify pathogenic mechanisms and novel therapeutic targets https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1558304245992-TTKCCVZ8JBNTSNUU0K2Y/Herzog.png Scientific Advisory Council - HERBERT HERTZOG Prof Herbert Herzog studied Chemistry, switching to Biochemistry for his PhD, which he obtained from the University of Innsbruck (Austria) in 1989. In 1991, he joined the Garvan Institute where he studies the role of NPY and other family members like PYY and pancreatic polypeptide, investigating the numerous different functions of these important molecules publishing over 280 articles on this topic. Prof Herzog currently holds a NHMRC - Senior Principal Research Fellowship and is the Chair in Neuroendocrinology at the Garvan Institute in Sydney. Prof Herzog’s current work focuses on determining the fundamental processes that can lead to the development of obesity, or the other extreme anorexia, especially investigating the brain's role in the regulation of eating behaviour, stress and glucose homeostasis. He is also interested in how homeostatic processes that regulate bodyweight are coordinated with other homeostatic processes in the body, like the one that control bone and fat mass and how this changes with age. https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1443600707720-1NVZ936UVJ4EMCBMLCSB/Jeff+Craig.jpg Scientific Advisory Council - Associate Professor Jeff Craig SENIOR RESEARCH FELLOW, ENVIRONMENTAL & GENETIC EPIDEMIOLOGY RESEARCH, MCRI Associate Professor Craig works in the Environmental and Genetic Epidemiology Research Group at the Murdoch Childrens Research Institute and is an Honorary Associate Professor within the Department of Paediatrics, the University of Melbourne. He leads a team of researchers in the Early Life Epigenetics Group. https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1449651329659-7M9UIOB2CPMJQM2JWMDE/person-placeholder.jpg Scientific Advisory Council - Dr Theresa Strong CHAIR, SCIENTIFIC ADVISORY BOARD, FOUNDATION FOR PRADER-WILLI RESEARCH Dr Strong received a B.S. from Rutgers University and a Ph.D. in Medical Genetics from the University of Alabama at Birmingham (UAB). She performed postdoctoral studies at the University of Michigan in the laboratory of Francis Collins, M.D., Ph.D., studying the molecular basis of the inherited diseases cystic fibrosis and Huntington disease. After completing her postdoctoral work, she returned to the faculty at UAB, where she is currently a Professor in the Department of Medicine. She is also a Scientist in UAB’s Comprehensive Cancer Center, where her laboratory focuses primarily on gene therapy for cancer. She and her husband Jim have four children, including a son with PWS. Theresa is one of the founding members of FPWR and directs FPWR’s Grant Program. https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1449651122424-19T681ISAKALVY7XFM9S/person-placeholder.jpg Scientific Advisory Council - DR SARA HOWDEN POSTDOCTORAL FELLOW MCRI After receiving a BSc from the University of Melbourne, Dr Howden completed her PhD in the Cell and Gene Therapy lab at the Murdoch Children's Research Institute. In 2008, she joined the laboratory of Dr James Thomson (USA) for several years of postdoctoral training. She has recently returned to complete the Australian component of her Overseas Biomedical research fellowship where she will continue to develop and apply the reprogramming and gene targeting methodologies she acquired during her time in the Thomson lab. https://images.squarespace-cdn.com/content/v1/560b82a7e4b0bc213aaa29e2/1568343084401-8EU7ZK6N6RKRVOQ0MXO1/lauren.png Scientific Advisory Council - Lauren Rice Lauren Rice is a Research Fellow at the Brain and Mind Centre, University of Sydney and The Children’s Hospital Westmead Clinical School. She completed a Bachelor of Psychology from the University of Western Sydney and a PhD from the University of Sydney. Her thesis explored the characteristics and causal mechanisms of temper outbursts in Prader Willi Syndrome and included the first study to identify a deficit in brain gamma-aminobutyric acid (GABA) levels in PWS. Lauren’s postdoctoral PWS work is looking at the efficacy of a mindfulness-based intervention at reducing temper outbursts, the nature of the oxytocin abnormality and the role of the GABA system in behaviour disturbance. 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