Our most recent newsletter covers:

  • Research

  • A reminder of PWRFA’s strategy

  • The year ahead

  • Our organisation

Read our latest newsletter here.

You can signup for our newsletter by inputting your details below.

View past newsletters here.

"The only way we change life with Prader-Willi syndrome is to show that as a community we are committed, we care and we believe research will make a difference".


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We're very pleased to announce that we now have a newsletter which provides more detailed information about our activities, the latest Australian research into Prader-Willi syndrome and upcoming events. You can sign up by completing your email address below:

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