Clinical Trials Recruiting in Australia

Clinical trials are an important and essential step in the development of new treatments for PWS. While PWFRA does not endorse or recommend any specific study, we do seek to provide information about trials that people living in Australia can participate in.

If you are considering participating in a clinical trial please talk to your doctor and the study coordinator to find out if the trial is right for you.

Additional general information about clinical trials can be found on the Australian Clinical Trials website.

Study
Type
Age
Location
Contact/Study Link
ENGAGE study; effect of exenatide on appetite and gastric emptying (Campbell/Viardot)
Drug intervention
18
Sydney
Oxytocin and the autonomic nervous system in PWS (Einfeld/Rice) closing end April*
Drug intervention
13-30
Sydney & Melbourne
Effect of Liraglutide for Weight Management in Paediatric Subjects With Prader-Willi Syndrome (NovoNordisc/RCH/Charles Perkins)
Drug intervention
6-11
Sydney & Melbourne
RCH: 03 9345 5570; Shannon.Kokoszka@rch.org.au Charles Perkins: Ph 02 8627 1932; tegan.picone@sydney.edu.au
Mindfulness-based intervention for temper outbursts (Einfeld/Rice)
Behaviour intervention
13-30
Phone or web-based
PATH for PWS; understanding how PWS changes over time, and serious medical events in PWS (Zafgen/FPWR)
Observational database
5+
Web-based
Establishing a national platform for the provision of evidence based practice in Prader-Willi syndrome (Downs/Choong/TKI)
Observational database
0-25
Nation-wide

Please forward details of additional PWS studies recruiting in Australia to info@praderwilli.org.au

Last updated: 11 February 2019