Clinical Trials Recruiting in Australia

Clinical trials are an important and essential step in the development of new treatments for PWS. While PWFRA does not endorse or recommend any specific study, we do seek to provide information about trials that people living in Australia can participate in.

If you are considering participating in a clinical trial please talk to your doctor and the study coordinator to find out if the trial is right for you.

Additional general information about clinical trials can be found on the Australian Clinical Trials website.


Study Type Age Location Contact/Study Link
ENGAGE study; effect of exenatide on appetite and gastric emptying (Campbell/Viardot) Drug intervention 18 Sydney pws@garvan.org.au
Oxytocin and the autonomic nervous system in PWS (Einfeld/Rice) Drug intervention 13-30 Sydney & Melbourne fhs.devpsych@sydney.edu.au
Mindfulness-based intervention for temper outbursts (Einfeld/Rice) Behaviour intervention 13-30 Phone or web-based fhs.devpsych@sydney.edu.au
PATH for PWS; understanding how PWS changes over time, and serious medical events in PWS (Zafgen/FPWR) Observational database 5+ Web-based PATH for PWS
Safety, tolerability, and effects of Livoletide (AZP-531), an unacylated ghrelin analog, on food-related behaviors in patients with Prader-Willi syndrome. Click for more information. Drug intervention 8-65 Sydney (Charles Perkins Centre) Tegan Picone 86276048 or tegan.picone@sydney.edu.au
Drug intervention 18+ Melbourne (Heidelberg Repatriation Hospital) Tamara Debreceni 03 9496 4026 or Tamara.debreceni@unimelb.edu.au
Experience of Adult Siblings of Individuals with Intellectual Disabilities Closing in August Click for more information. Online Survey 18 years+ Web Based Natasha Shukla at NShukla1@twu.edu
Survey Link

Please forward details of additional PWS studies recruiting in Australia to info@praderwilli.org.au

Last updated: 23 July 2019


Research Fellow

Closing date: Wednesday 23rd October 2019
Location: Melbourne

About the role

La Trobe University’s success is driven by people who are committed to making a difference. They are creative and highly motivated, pursue new ideas and create knowledge. La Trobe is one of Australia’s research leaders, and the largest provider of higher education to regional Victoria.  Our teaching and research address some of the most significant issues of our time and we’re passionate about driving change through operational excellence to benefit the communities we serve.

The key focus of the Research Follow position is to take on the role of project manager/ trial coordinator for a four year study funded by the Medical Research Future Fund. This trial will recruit 60 people with Prader–Willi syndrome aged 13 years and over.

The primary responsibility of this role will be to manage the daily activity of the trial including working as part of a cross institutional team. You will provide operational research and project management to achieve high quality research objectives.