Program & Speakers
Welcome to the Program
We are delighted to share the program for the 2026 Prader-Willi Research and Family Conference. Over three inspiring days, delegates will experience a carefully curated blend of sessions designed to inform, connect, and inspire.
A Balanced Program for All
The conference is built on a balance of cutting-edge research, practical clinical guidance, future-focused innovation, and family empowerment. Whether you are a scientist, clinician, support worker, person with PWS, or family member, there will be sessions tailored to your needs and interests.
What to Expect
Our program features international keynote speakers, engaging breakout sessions, hands-on workshops, and meaningful networking events. Together, these elements create a dynamic learning environment and a powerful space for collaboration across the Prader-Willi community.
Session Tracks & Themes
To help delegates design their learning journey, sessions will be grouped into four key streams:
Research & Discovery
Cutting-edge scientific findings, emerging research methods, and collaboration opportunities.
Clinical Practice & Allied Health
Best practice guidelines, treatment innovations, and tools for GPs, therapists, and educators.
Innovation & Future Directions
Advances in technology, clinical trials, and new approaches are shaping the future of care.
Family Empowerment & Advocacy
Practical workshops on navigating services, building networks, and amplifying lived experience voices.
Plenary Speakers
We’re thrilled to announce world-renowned Prader-Willi syndrome researcher clinician Professor Jennifer Miller as a plenary speaker at the 2026 Prader-Willi Research and Family Conference.
Dr Miller is a Professor of Paediatric Endocrinology at the University of Florida and has spent more than 20 years working with individuals living with Prader-Willi syndrome and other forms of hypothalamic dysfunction. Her work focuses on understanding hyperphagia and developing clinical treatment trials for people of all ages affected by hypothalamic obesity.
With decades of clinical and research experience, Professor Miller brings deep insight into the biology of appetite regulation and the emerging therapies shaping care into the future.
We’re grateful to welcome Professor Miller as part of our international plenary speaker lineup.
We’re delighted to announce our plenary speaker for the 2026 Prader-Willi Research and Family Conference, Associate Professor Laura de Graaff. She is a leading international voice in the care of adults with Prader-Willi syndrome.
Dr de Graaff is an Associate Professor of Genetic and Developmental Endocrinology at Erasmus and Radboud University Medical Center in the Netherlands.
As founder of the Center for Adults with Rare Genetic Syndromes, A/Prof de Graaff leads both clinical and fundamental research exploring the biomolecular pathways and cellular mechanisms underlying PWS. Her work includes dedicated research into the effects of growth hormone treatment on cellular ageing in adults with Prader-Willi syndrome.
Dr de Graaff also co-founded and leads the adult department of the Dutch Centre of Reference for Prader-Willi syndrome, where her multidisciplinary team has supported more than 210 adults living with PWS. Through her leadership within European Reference Networks, she continues to shape best practice for adult care across rare and complex conditions.
We’re grateful to welcome A/Prof de Graaff as part of our international plenary speaker lineup and look forward to the depth of expertise she will bring to the 2026 conference.
