2026 Prader-Willi Syndrome Research and Family Conference

Pathways Forward: Where Hope Ignites Innovation

The 2026 Prader-Willi Research and Family Conference, Pathways Forward: Where Hope Ignites Innovation, will be the landmark event of the year for the Prader-Willi Syndrome (PWS) community. Hosted by the Prader-Willi Research Foundation Australia (PWRFA), the conference will bring together researchers, scientists, clinicians, families, and the wider disability and rare disease community. 

Across three inspiring days, the program will showcase world-leading Australian research, highlight innovative clinical practices, and provide families with resources, workshops, and community connections. Delegates can look forward to a mix of international plenary speakers, research symposiums, and a dedicated family program, alongside special events including the Research Catalyst Dinner and a Cocktail Welcome Reception. 

This year’s theme reflects our vision of a future where cutting-edge research, compassionate care, and empowered families come together to create new possibilities for people living with PWS. It acknowledges the challenges while celebrating the hope, resilience, and innovation that drive progress.  

Mission Statement: 


The 2026 Prader-Willi Research and Family Conference is dedicated to empowering people with PWS and their families across all life stages, while advancing scientific discovery and clinical excellence. By fostering collaboration between researchers, clinicians, families, and community advocates, we aim to accelerate learning, strengthen connections, and amplify the voices of people with PWS nationwide. 

Dates: 28th to 30th August 2026 

Location: Brisbane Airport Conference Centre, Queensland 

Register your interest

What’s New in 2026 

This edition of the conference builds on past successes while introducing exciting new features: 

  • Expanded International Program: More global voices and cross-country collaboration opportunities. 

  • Research Catalyst Dinner: An exclusive gathering to spark new partnerships between researchers, clinicians, and decision-makers. 

  • Dedicated Family Program: Practical workshops on navigating the NDIS, building advocacy skills, and connecting with support networks. 

  • Clinical Trial Showcase: All clinical trials recruiting in Australia will have the opportunity to present and connect with families. 

  • Enhanced Networking: From the Cocktail Welcome Reception to informal connection spaces, the 2026 event will make it easier than ever to build lasting partnerships. 

This year’s program is designed not just to inform but to ignite hope, inspire action, and strengthen community bonds.