We are dedicated to improving clinical outcomes and delivering better treatments for people living with Prader-Willi Syndrome
We do this by funding cutting-edge research which will help people with Prader-Willi Syndrome live independent lives, free from the most debilitating aspects of the condition - hyperphagia (uncontrollable hunger), mental illness including anxiety, obesity and the severe complications that can arise from slow gastic emptying.
Our foundation has three aims:
In the short to medium term, we aim to fund research which improves symptom management and outcomes. We know that continuous incremental improvements in clinical care can have a transformative effect on quality of life for people who have Prader-Willi Syndrome.
In the longer term, we aim to fund research which will develop an ideal treatment that targets the genes involved in Prader-Willi Syndrome.
We provide a link between people who have Prader-Willi Syndrome, their families, clinicians and researchers. These links help inform our research and improve the translation of research into clinical outcomes to improve the treatment of Prader-Willi Syndrome.
Your donation will fund vital research and clinical services to improve the lives of people with Prader-Willi Syndrome.