In 2019, PWRFA was fortunate to be able to host in person events in Sydney, Melbourne, Newcastle, Orange and WA. These events provided a truly incredible opportunity for PWS families and friends to come together and celebrate exercise and enjoy a sense of community. In 2020, we pivoted to a digital only campaign and launched the 'MOVE' initiative. In 2021, we were fortunate to be able to hold a hybrid online and in person MOVE 15KM campaign. This worked extremely well and saw individuals and teams participate on their own or in a local group to MOVE for PWS.
What is the impact of the funds raised at the May event?
PWRFA funds support scientists like Dr Leighton, who is working to understand how SNORD116 works
PWRFA funds support scientists like Dr Waryah and Prof Blewitt who are investigating PWS gene activation strategies
PWRFA funds support scientists like Professor Nixon whose work will lead to a better understanding of sleep-disordered breathing in PWS
We'd love for you to join us this May but Moving 15 KM to help us drive the research forward for all people with PWS.
See what some of the teams will be getting up to over on https://www.facebook.com/PWRFA