2026 Prader-Willi Syndrome Research and Family Conference
Pathways Forward: Where Hope Ignites Innovation
The 2026 Prader-Willi Research and Family Conference, Pathways Forward: Where Hope Ignites Innovation, will be the landmark event of the year for the Prader-Willi Syndrome (PWS) community. Hosted by the Prader-Willi Research Foundation Australia (PWRFA), the conference will bring together researchers, scientists, clinicians, families, and the wider disability and rare disease community.
Across three inspiring days, the program will showcase world-leading Australian research, highlight innovative clinical practices, and provide families with resources, workshops, and community connections. Delegates can look forward to a mix of international plenary speakers, research symposiums, and a dedicated family program, alongside special events including the PWS Gala Dinner and a Cocktail Welcome Reception.
This year’s theme reflects our vision of a future where cutting-edge research, compassionate care, and empowered families come together to create new possibilities for people living with PWS. It acknowledges the challenges while celebrating the hope, resilience, and innovation that drive progress.
Mission Statement:
The 2026 Prader-Willi Research and Family Conference is dedicated to empowering people with PWS and their families across all life stages, while advancing scientific discovery and clinical excellence. By fostering collaboration between researchers, clinicians, families, and community advocates, we aim to accelerate learning, strengthen connections, and amplify the voices of people with PWS nationwide.
How to buy tickets and apply an Early Bird discount
The following Early Bird discount codes are available for eligible ticket types:
EB-FAM – Early Bird Family for our immediate PWS family members - tickets are 30% discount
EB-RGC – Early Bird for Researchers, sceintists, clinicians and government - 13% discount
EB-STUDENT – Early Bird Student tickets - 37% discount
Open the ticket link below “get tickets” or visit this LINK.
Select your ticket type and the number of days you wish to attend, purchase a package for multi day tickets.
Enter your discount code in the “Discount code” field.
Select “Apply” and confirm the discounted price is shown.
Proceed to checkout.
Enter your details and complete payment.
Tickets will be emailed to you directly once your purchase is complete.
Important information
• Discount codes DO NOT apply to Day 1 cocktail recption or the Gala dinner tickets.
• Early Bird discounts are finish midnight April 15 and subject to availability.
• Discount codes must be applied at checkout and cannot be added after purchase.
• Only one discount code can be used per order.
• Ticket numbers are capped and some ticket types may sell out.
If you have any issues purchasing tickets or applying a discount code, please contact the conference team for assistance at nicole@praderwilli.org.au
2026 Highlights
Building on the overwhelming success of our 2024 conference—where attendees praised the cutting-edge treatment insights, world-class presenters, groundbreaking research, and invaluable opportunities to connect with families, researchers, and clinicians—the 2026 edition takes everything you loved and amplifies it with exciting new features:
Expanded International Program: More global voices and cross-country collaboration opportunities, bringing you the latest advances in PWS research and treatment from around the world.
Research Catalyst Dinner: An exclusive gathering designed to spark new partnerships between researchers, clinicians, and decision-makers. This intimate setting creates the perfect environment for meaningful conversations that could shape the future of PWS care.
Dedicated Family Program: Practical workshops on navigating the NDIS, building advocacy skills, and connecting with support networks. These sessions provide the tools and knowledge families need to champion their loved ones.
Clinical Trial Showcase: Every clinical trial currently recruiting in Australia will have the opportunity to present and connect directly with families, making it easier than ever to explore participation and ask questions.
Enhanced Networking Opportunities: From the Cocktail Welcome Reception to carefully designed informal connection spaces throughout the venue, we've created more moments for you to build the lasting partnerships and friendships that strengthen our community.
This year's program is designed not just to inform but to ignite hope, inspire action, and strengthen the bonds that make our PWS community so remarkable.